This Website is such a wonderful one. I am so pleased to have found it.

I was very inspired to read Vinnie's Website. I also had a 'benign' pheo removed in Dec 97 but it has regrown! Vinnie has been a great help.

Is there anyone else out there that has had a similar experience? I would love to hear about their treatment etc. At the moment I have yet to find out if the new regrowth is benign or malignant. I am in the process of finding out more, but feel that I need to make certain decisions regarding the treatment and medication very quickly because of the speed of the regrowth. I desperately need to know what sort of questions to ask my specialists, especially when they have not dealt with many pheo. Any help is very much appreciated.

Please can you include my call for help in your message board where others could read it? Thank you for your time.

Feel free to email me at schynee@xtra.co.nz

Also, I am new to this site. I forgot to let you folks out there know that I am not living in the USA. I am in fact living in Auckland, New Zealand. As in everywhere else, not many with 'regrown' pheo here. I would very much appreciate it if someone who has gone through treatment like MIBG, chemo, RT or anything else to treat pheo mets etc., to kindly write to me. I am desperate for help.